E+

Join the E+

Together, we are stronger. By joining E+A, you become part of a powerful network dedicated to transforming the lives of those affected by E+.

Unite with patients, families, caregivers, and professionals to share experiences, amplify your voice, and drive real change. Join us and help shape a future where no one faces E+ alone.

Ways to join

  • Full members

    Full Members have voting rights in the General Assembly and are expected to actively engage in the Alliance’s activities.

    This includes participating in working groups and contributing their expertise and insights.

  • Associated members

    Associated Members do not have voting rights in the General Assembly, except on specific matters designated by the Executive Board.

    They are, however, entitled to be heard and to provide suggestions during General Assembly discussions.

About us

E+A unites patients, families, healthcare professionals, researchers, and advocates to improve lives affected by E+. Together, we drive collective action, build community, and ensure patient voices shape research, education, and policy, so everyone can access the care and support they need to reach their full potential.

Our board

United by purpose, we are committed to empowering every individual and family affected by E+ building a future where no one faces these challenges alone.

E+A was created from the collective experiences of patients, families, and local patient groups across Europe who faced challenges in managing E+.

Our history

These groups recognized the need to come together to share knowledge, support one another, and address common difficulties such as delayed diagnosis, limited treatment options, gaps in care, profound impact on families and the need for a holistic approach.

Over time, this collaboration grew into a wider alliance, bringing together diverse voices from different countries to work on shared goals.

E+A builds on the practical insights and lived experiences of those directly affected, aiming to improve services and outcomes by connecting local efforts on a larger scale.

E+A was officially established according to Royal Decree on April 7th, 2025, as an AISBL (international non-profit association) based in Belgium. Our headquarters are located at Avenue Winston Churchill 11/30, 1180 Brussels, Belgium. Since then, E+A has been committed to uniting and supporting those affected by E+ across Europe.

Our objective

Hope. Strength. Union. These aren’t just values — they’re how we move forward.

  1. Holistic care for Patients and families
  2. Support for patients, caregivers, and siblings
  3. Access to effective treatments
  4. Building a strong European and international network
  5. Amplifying the voice of patients and caregivers in research and policy

Our values

  • Hope

    We believe in a brighter future for everyone affected by E+. Hope drives us to advocate for better treatments, improved care, and a supportive community where no one feels alone.

  • Strength

    Facing E+ requires resilience from patients, families, and caregivers alike. We celebrate this strength and provide the support needed to overcome challenges together.

  • Union

    Together we are stronger. We foster collaboration and solidarity among patients, families, healthcare professionals, and advocates to amplify our collective voice and create meaningful change.

How we help each other

Patients

We’re here to support you every step of the way.

Access reliable information, connect with others who truly understand your experience, and find the resources you need to manage life with rare and complex epilepsies.

Healthcare Professionals

Gain valuable insights from patients and families to better understand the day-to-day challenges of living with E+.

Collaborate with us to enhance communication, care approaches, and holistic treatment plans.

Associations

Join a growing community of patient groups and epilepsy organizations working side by side.

Share your knowledge, amplify your voice, and strengthen advocacy efforts across borders.

Pharma

Collaborate with us to align research and development with the real needs of patients and families affected by rare and complex epilepsies.

By engaging with our community, you can help drive patient-centered innovation and ensure treatments deliver meaningful improvements in quality of life—while adhering to ethical and regulatory standards.

We encourage open, transparent collaboration to accelerate research, share insights, and develop solutions that truly make a difference.

Contact us

For enquiries, support, or collaboration opportunities, please do not hesitate to get in touch. Our team is committed to providing timely and helpful responses to all your questions and requests.

info@epilepsyplus.org

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